Frequently asked questions about my disability.
Yes, my lower back does hurt, standing and cooking aggravates it more.
I am able to drive and have my own car. Since I am unable to walk from most parking spots, I have a government issued handi-cap pass.
It takes a lot of energy to walk ,and because I use my hands for stability and to hold my back up from folding over, my arms get sore and have a hard time supporting myself when walking.
I am able to have children, but there is a strong possibility that I will not be able to walk at all afterwards. Also, the child will either have Muscular Dystrophy or be a carrier of the gene, meaning they'll pass the diseased gene to their children.
Yes, but sometimes less obvious then other times. There is an assumption that if you have a physical disability that you automatically have a mental disability, and people won't engage you in problem solving or they assume you are unable to tackle any "complicated" tasks.
Yes, I work a desk job.
Muscular Dystrophy can kill. I am fortunate to have a strain that does not kill.
Since most of my medical expenses are not paid for, they cost over $15,000.00 a year.
I use to wear a back brace but recently am unable to use it. My only walking aids are my arms and hands that hold up my lower back.
No one else in my family has M.D, I am referred to as a mutant gene.
Please contact us for more information on how to help improve Brynn's health and increase her quality of life.
(613) 825-2901
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